It’s been almost two months since I updated you. It hasn’t been a particularly enlightening two months.
I did finally get an appointment for the specialty clinic. That appointment went well; I have an awesome occupational therapist and doctor who are in charge of my case. The doctor, unfortunately, is an elbow surgeon who’s not quite sure why WSIB has referred me to him, but he’s willing to send me to specialists and tests.
They sent me to a Neurologist. I was really excited to finally see one. He did the exact same test that the carpal tunnel doctor did back in August. He says I have a little bit of carpel tunnel in my wrists, but that shouldn’t be bothering me. There’s no indication that my nerves are damaged or that they’ve had any issues at all.
He ended the exam saying that I was too young to worry about it and that if it were up to him he’d say to forget all this WSIB stuff and just go back to my normal routine and then added that the whole thing was ridiculous.
When I asked him about the numbness in my face he said, “That’s nothing. Ignore it.”
I was disheartened and angry. I’m not sure if he thought I was faking or that I was exaggerating my pain, but it was really condescending.
The nice elbow doctor and occupational therapist had scheduled an MRI for my neck, but with the Neurologist saying that I don’t have any nerve damage, they canceled it.
The downside to the clinic is that I only get appointments every 6 weeks. My next one is early April and hopefully they won’t be as dismissive as the Neurologist.
Unfortunately, I’m still in a lot of pain and it’s not getting better. My face is still numb and it aches a little when I work too long. I also find the vision in my left eye gets worse when I overdo it.
Between the pain, the clumsiness, and the numbness in my face, I’m starting to suspect MS. When I had an optometrist appointment in December, he said he couldn’t get my left eye to be as clear. I asked him about the numbness and that I sometimes got blurry vision in my left eye. He said that it couldn’t be nerves and that it’s possibly a side effect of fatigue. He said the only thing he knew that would affect my eye and not be seen in his tests was MS.
I’d hoped the Neurologist would have been able to test for that, but he didn’t.
MS is a scary prospect, but I’d rather find out than not know. There are plenty of other options; Fibromyalgia, Myofascial Pain Syndrome, and some much scarier, like ALS or cancer.
So a lot happened, but nothing new was discovered. Let’s hope this is just another step to figuring it out.
Stay safe and be kind,