Health Update January 2025

Hello Friends, Fans, and Family;

It’s been an interesting couple of years for my health. I last talked about it in July 2024.

In short, I’ve been dealing with:

  • Pain in both my forearms
  • Dizzyness
  • Fatigue
  • Brain Fog
  • Tingling in my hands and feet
  • Numb and tingling on my left cheek
  • Blurry vision in my left eye
  • Pain in the joints of my hands and feet

Arms and Spine

I am doing exercises and stretches to help avoid pain. It still there in my arms but it’s manageable. I sometimes get pain in my neck that radiates down, but I double up my exercises and it usually goes away within a week.

Migraines

This is the big one. I’m currently taking Amitriptyline to try and prevent the migraines. So far I’ve been on it for two months with an escalating dose, and it hasn’t done much beyond make me sleepy and have terrible dry mouth. If this doesn’t work, there are other drug options.

I am starting to identify my triggers better. I know the following will trigger me:

  • Big change in caffeine consumption (If I have no coffee or if I have 4+ cups)
  • Alcohol (I noticed it with red wine and with cream liqueurs but I’m just cutting it all out.)
  • Changes in eating routine (If I don’t eat every 2-3 hours I start to feel faint and it can trigger)
  • Changes in sleep patterns. (Especially if the change is often)
  • Fluorescent lights
  • Strong smells (Mostly anything floral or going close to a soap store in the mall. Although someone had a poutine at work and the smell lasted all day. I loved the smell but ouch)
  • Changes of 10+ degrees in the weather and rainstorms. (I have no control over this one.)

Stress doesn’t seem to make the migraine worse but it does make the side effects worse. I had a really stressful day in December and for the next two weeks the muscles in my hips hurt like they were on fire. It’s caused by the migraine, the brain, and the two causing muscles to tense too far (probably what happened to my arms.)

I see my doctor on Wednesday and we’ll see what happens. I think this is a long haul.

Allergies

I have restarted my allergy shots and one week hasn’t cured me yet. I’ll be taking them weekly for 22 weeks. My allergist’s office prefers that I do the shots elsewhere so I’m thinking of going to an Appletree near my house on my lunch break.

Neurodiversity

As I mentioned in Friday’s post, I am Autistic and have ADHD. This explains a lot about how I burn out and how drained I feel in certain situations. It, with the migraines, explains a lot of why I feel like crap at certain times.

I’m not sure how this interacts with my other health issues but I’m sure that they interact and make things more complicated.

Sleep apnea and asthma

I have taken an asthma test and I am scheduled for a sleep test this summer. Hopefully these will be eliminated as concerns.


In Conclusion

Despite everything on this list, I feel better than I have in years. With my doctor’s help and hopefully finding the right thing to help with my migraines I should be even better by next year.

Stay safe and be kind,

Éric

Éric’s 2025 New Year’s Resolutions

Hello my friends, Family, and Fans;

Typing in 2025 feels like I’m writting some far off date not the actual year. Not sure I’m in love with the future as it is but let’s concentrate on the things that we can control.

This year, I’m going to be extra ambitious with my resolutions. (Quick reminder, my resolutions are goals that are meant to push me.)

A kids slide with a web across the bottom and two spiders on it. The caption reads, "If we pull this off, we'll eat like kings."

1. Write The Hounds of Bakerville

I have a basic outline and I’m going to start re-reading the first four to get back into it. It’s kind of exciting to be working on the penultimate book in the series.

2. Write a serial story

I’m not sure what I’m writing this year, but I will try to get a 1000 word chapter out each month. This is going to be the twelfth year I do it.

3. Master 1 song on the ukulele and record it.

I wrote a song for Elizabeth 4 and set up the chords, but between the colds and the medical issues, I didn’t get really good at it. I’m going to do my best to get good enough to record it.

4. Read at least 12 books

Last year I crushed my reading challenge and I’m hoping I can do the same this year. 12 might not sound ambitious but it is.

5. Build my new book nook and lego

Three years ago for Christmas I got a Magical Cafe book nook. Over the three years I’ve made it to page 17 of 40ish I think. There’s so much painting and gluing and it’s really hard. This year, my sister in-law took pity and got me another one that doesn’t need the paint or the glue. Maybe this will help build my confidence.

I also got an epic Van Gogh’s Starry Night LEGO set. It has a lot of pieces.

6. Feel less guilty

2024 was a busy year and now that I’m feeling better, I have more time that isn’t just for recovering. I’m having trouble taking that time for me and not feeling bad about it. It’s not selfish to read, it’s not selfish to watch a show on my own, it’s not selfish to do things for me. I know that, but I’m having trouble shutting up the little voice in my head.

7. Design and deploy a new coffee flavour for Ottawa Comic Con in September

I have an idea what it’s going to be, so this should be easy.

8. Plan and plot out the first in a cozy mystery series

I have this idea for a series of short cozy mysteries. The hope is to make them around 40 thousand words and just have fun. It would also give me the chance to play around with self-publishing. The idea would be to write this after Elizabeth 5 before I jump right into the final book.

9. Organize a massive birthday party and book release

This one scares me, but I want to do a joint book release* with Jen this summer. (By the way you should totally check out her cover reveal for Winging It!)

*More details in a future post.

10. Keep fighting to learn more about myself and how to make my life easier

I have learned a lot about my body and mind this year, and I know I have a lot of work, both to improve my health and to accept what and who I am. More details in a future post.


I hope that everyone has a productive, healthy, and good 2025.

Éric

Health Update July 2024

Hello Friends, Family, and Fans;

The slow wheel of healthcare has finally come around. Here’s my last update from April. If you don’t want to read all that, I have had issues the past 2 years with:

  • Pain in both my forearms
  • Dizzyness
  • Fatigue
  • Brain Fog
  • Tingling in my hands and feet
  • Numb and tingling on my left cheek
  • Blurry vision in my left eye
  • Pain in the joints of my hands and feet

The Road So Far

I’ve seen 3 family doctors, 2 neurologists, 1 elbow surgeon, 3 physios, 1 neuro-ophthalmologist, and a neurologist who specializes in MS; and I’ve been poked, prodded, and shoved in metal tubes a lot.

Here’s a list of things that have been eliminated as possibilities for what’s wrong with me:

  • MS and other degenerative neurological disorders (this is a ‘we don’t see signs but if there are changes, come see us’)
  • Tennis elbow
  • Spinal injury
  • Brain tumour

Last year, I did intensive physio with the clinic associated with WSIB. It was a three-pronged rehab, physio, and therapy. Each helped a little but had their limits. The clinic’s goal was only to get me back to work and not to find the root cause of my problems.

It was effective at lowering my pain levels by 20 to 30 percent. It’s gotten a little worse since but I’m still better a year later than I was when I started. My pain is constant but manageable, both because I’m used to it and because of the physio. It still makes everything harder however. That doctor did say I have mild carpal-tunnel and should keep an eye on it.

What’s Wrong with Me

The most recent round of doctors have cleared me of those scary ones mentioned above, and the nice MS doctor has diagnosed me with Complex Migraines (also called Atypical Migraines) and Foraminal Stenosis in the C5-6 disks.

Foraminal Stenosis means that the nerves outside my spine are being pinched. The recommendation is physio to help with back strength and posture. If that doesn’t work, I’ll be referred to a surgeon.

As for the main culprit, they think its Complex Migraines. The quick explanation of this is that I’m having non-pain migraine symptoms regularly. So the blurry vision is like halos, and the rest are typical migraine issues, but my body doesn’t always include more then a feeling of pressure in my left temple.

For the migraines, the doctor recommends:

  • Discovering my triggers
  • Avoiding alcohol, drugs, and tobacco (Not going to be hard since I barely drink and don’t do either of the others)
  • Drinking at least 2 litres of liquid a day
  • A vitamine combo of 400mg each of Magnesium, Co-Enzyme Q10, and vitamin B2 (riboflavin)
  • Regular sleep habits (Go to bed at the same time and wake up at the same time all week)
  • Consuming the same amount of caffeine each day
  • Eating regularly (same time every day)

If that doesn’t work after 3 months, I should talk to my doctor about pain killers or going to a pain clinic.

In the meantime, he recommends I get tested for sleep apnea, get a colonoscopy, and as mentioned above, see a physio.

That means I have a plan for moving forward and a tentative diagnoses. Let’s hope the above can fix me.

I still find it amazing that all this pain in my arms and hands could be caused by migraines, but that’s what we have.

Thanks for reading,

Éric

Health Update April 2024

Hello Friends, Family, and Fans;

I haven’t written an update since January because I’m still waiting on some results. However, there are some things I can tell you.

How’s my body doing

Heart

I wore a heart monitor for three days and despite what the RSV did while I was sick, my heart is back to normal. My heart rate is still a little high but within normal ranges.

Arms

My arms still hurt, pretty much all the time, but it’s manageable with exercise and stretching. I’ve only needed to put muscle cream on my arms once this year.

Face and left eye

Still numb and still having vision issues. It gets worse if I spend a lot of time concentrating or sitting in a computer chair.

Tests

MRI

I did an MRI of my head, neck, and back. I have an appointment with the neuro-etymologist in June. He might talk to me about it or I might have to wait for the MS doctor in July.

I saw the results but it’s in Medical-jargon and I’m not sure. It seems that there’s a UBO (Unidentified bright object) behind my left eye but according to the internet that could be a bug in the test.

It also say that I have no sign of, “demyelinating disease”.

Lastly it says that I have, “Multilevel degenerative changes within the cervical spine causing various degrees of spinal canal foraminal stenosis, worse at the c5-c6.” Which the internet tells me is a “narrowing that happens in certain places around the nerves that come out of your spinal cord”.

But again, this is my quick googling and not anything official from a doctor.

Vision Tests

I have a few repeat tests for eyes in June and a few to test for MS (unscheduled – doctor wanted to see MRI first).

Allergies

I have bad allergies. In 2007 I woke up feeling super weak and forced myself out of bed. The exertion burst the veins in my eyes. I got an appointment with an allergist and was tested and put on shots. They really helped.

After 5 years, I was told that they wouldn’t help me more and that if my symptoms worsened after 5 years to come see the allergist again.

In 2019, my allergies got really bad and I started getting what I call Allergy Attacks. My bowels cramp, and I get weak, and it takes about a week to recover. I didn’t realize it was allergies that caused it until last year.

I really felt it in 2020 but pushed it off.

I finally broke two weeks ago and contacted my allergist. Unfortunately after 10 years you need a new referral.

Long story short, I have an appointment with my family doctor on Wednesday to talk about allergies.

Colds

Last, and certainly most frustrating, are head colds. I’ve now had 4 since January and I’m pretty tired of blowing my nose and coughing.

I feel better today then I have in a while but I’m still sniffling and coughing. The whole thing is made worse combined with allergies. (And no, going outside and eating dirt will not help strengthen my immune system.)

Conclusion

I’m doing okay and I have leads to what might be wrong with me. Hopefully the doctors can narrow it down and I can start treating whatever it is to make sure it doesn’t get worse.

Stay safe and be kind,

Éric

I had a near death experience and it changed…

Hello Friends, Family, and Fans;

I’m feeling much better and all my doctor’s appointments have gone well. I still have heart, brain, eye, and various other tests to go through, but besides that I’m good.

I was told on December 8th that if I had waited before going to the hospital, I would have either had a stroke or a heart attack. Effectively, I was one bad decision away from death.

In case you weren’t following, I was hospitalized on December 8th with an extremely high heart rate and irregular heartbeat due to a really bad case of RSV. I had been sick for five days and was dehydrated, malnourished, and had developed mild pneumonia. I had trouble breathing and was coughing up quarter-sized chunks of cranberry-red gunk.

As I lay there waiting for the medication to control my heart or for death to take me, I thought to myself that this was a pivotal moment, I would never be the same. Because, that’s what happens… right?

I wish I could say I had some great epiphany about life, the universe, and everything, but I didn’t. Sure I longed to hug my wife and children, I wanted to write more, and I was sad at all the things I might miss in my family (blood and found), but none of that is new or revelatory.

I knew I had a good life and wonderful people in it before I got sick and I still know it after. Despite some physical and mental health issues, I’m a lucky man.

One big thing I need to say is how touched I am by all my friends and family who reached out to Jen and offered to help. I knew I had awesome people in my life, but I was still surprised by how awesome (and that was just a few that knew what was happening).

I guess in the end, I had a near death experience and it changed very little, but helped me appreciate the life, family, and friends that I have.

Thank you!

Be kind and stay safe,

Éric

First week at work

Hello,

I was worried about going back to work. I’m not sure why, I think it was just because I was feeling fatigued and low energy. I had nothing to worry about, my manager is super understanding and I still remember what I’m doing. Two things that made this much less stressful then it could have been.

It also helps that everyone else took some vacation over December so my projects were slowed down.

I took my last dose of the heart pills Wednesday morning and spent yesterday compulsively checking my heart rate on my phone. It was a little elevated (maybe from me stressing about it?) but still within the norm.

Overall, it’s been a good week. Let’s hope today continues the trend.

Stay safe and be kind,

Éric

I’m scared but I have hope

Hello Friends, Family, and Fans,

I’m back at work today, Dragon goes back to school, and life restarts after an extended break.

As I write this, I just finished reading the comments section on a Facebook post from Ottawa Public Health. I see in the comments a combination of anger and fear that is extremely familiar. Those that aren’t fake are people trying to come to terms with a world that seems to be falling apart. I understand the anger, I understand the frustration, and I understand the helplessness.

Unfortunately, we are in the golden age of cults. Yes, cults. From Dictionary.com, “An instance of great veneration of a person, ideal, or thing, especially as manifested by a body of admirers”.

Cults used to need to isolate and cut people off from their support systems in order to take advantage of them. In our curated digital world, it’s easy to find oneself isolated into specific communities with extreme ideas. My tik-tok is heavily queer, neurodivergent, writerly, and ttrpg based with a smattering of food and nutrition. I doubt that’s others’ experiences.

What this means is that we’re seeing more polarization and more us-vs-them and a lot more confusion. When everyone around you says the same thing and suddenly others are saying differently, it’s jarring and a little scary.

It’s a form of Cognitive Dissonance. That gut instinct of “am I wrong?” followed by either doubling down on your beliefs or challenging them. Unfortunately, there’s a lot more doubling down, especially when you are scared.

Basically, what I’m saying is that social media is a grade school rumour mill taken to the extreme. What that means for humanity is still to be decided.

No matter how hard it is to see, there is hope. Change is slow, social change doubly so. But every generation pushes it further. For every cult leader out there, there are people working to debunk their lies. For every 10-50 hate-filled comment, there are real people sharing their truths.

Hope in and of itself is powerful, with hope we can find the good. Without it we are lost.

What we can do is hard and doesn’t always work, but we can be kind. We can help those in need. We can tell the stories that need to be told. We can defend those who need it. And most of all, we can question everything.

That’s enough rambling from me.

Be kind and stay safe,

Éric

New year, Still Recovering

Hello family, friends, and fans;

It’s been a month, give or take, since I was hospitalized with RSV. Read more about it in a previous post.

Bad news is that I’m still coughing and still have a leaky nose. My voice is still off and I can barely hit medium notes. On top of that I’m still not at full energy, I’m having trouble standing/walking for more then a half hour without feeling faint. I’m still very dizzy but that is a side effect of the pills they gave me for my heart.

Good news is that I’ve got more energy then I did, I don’t need naps anymore. I am able and okay with writing. I can think clearly most of the time and I should be fine to work from home next week.

Unrelated to the RSV, I still have numbness in my face and pressure in my left temple. My wrists and arms are not bad, which is nice.

I have an appointment with the MS clinic next week, an internal specialist in 2 weeks, and the heart institute in March. Hopefully one of them will help with the long term stuff and hopefully the RSV leftover symtoms will go away.

Thanks for following and hope you have a healthy new year.

Éric

RSV and I

Hello Friends, Family, and Fans,

Sometime in the end of November, Dragon got sick again with her third cold. It quickly passed to Pegasus and to my mother-in-law. Jen and I were mysteriously unaffected.

Then I got a tickle in my throat and HUNGRY. As long as I can remember, when I start a non-vomiting cold, I get ridiculously hungry. Maybe my body is trying to get things ready for a bad cold.

By Saturday December 2nd, I was sick. I had trouble eating, moving, and talking. I tried to drink water as much as possible. Soon it was getting hard for me to breathe and both kids were still feeling it. We saw our family doctor on the 5th and I was prescribed a puffer and tests. Jen had a tickle by that point.

My nights were spent coughing and trying to force air into my lungs. In the Thursday as I was about to get a chest x-ray, my watch beeped and said something like, “You’re at rest and your heart rate just jumped, are you okay?”

Friday the 8th, I was sitting on the couch feeling my heart beat fast and not able to catch my breath. Finally Jen said, “Maybe you should go to the hospital?”

I didn’t want to. I didn’t want to leave my house and comfort, but my chest hurt. Jen called 911.

The ambulance took me to the Civic hospital where we found out:

  • My heart rate was 230 (normal resting is around 80-90)
  • I was dehydrated (probably from not being able to eat much, diarrhea, and fever)
  • I had low potassium, sodium, and magnesium
  • I had no vitamin D (doctors used the words “impossible” and “weird” more than I like about this)
  • I had a mild urinary tract infection

All of which was being caused by severe case of RSV and mild pneumonia.

At the hospital, they tried to shock my heart back into normal rhythm (twice) but it didn’t work. They gave me an IV with multiple medicines to help bring my heart rate down and by Saturday afternoon it was in the low 100’s.

Art by Dragon that was brought to the hospital in a care package along with some clothes and toiletries.

The rest of the weekend was spent coughing, hooked up to machines, and eating way too much crushed ice. The hospital staff took amazing care of me and I would be dead right now if not for them.

I was released on Monday, with pills that would control my heart rate, vitamin D supplements, and a plan to look in on me. They assure me the heart rate won’t be an issue once I get over the cold and I’ll be back to normal. (There was a hiccup with one of my IV sites getting infected, but I’m on antibiotics now.)

Now I need to recover. I’m still sick with RSV. I have no voice, my nose leaks, I’m coughing all night, I feel weak and dizzy. Several times I’ve worried about collapsing ,but I’m getting stronger.

Jen really stepped up and even through her own sickness (much shorter and milder than the rest of ours thankfully) made sure the kids and house were taken care of. I’m really proud of her.

We had a lot of support. My in-laws have been stalwart helpers, drivers, and kid herders. We also have amazing friends and neighbours who checked in and made sure we were okay. Thank you!

My work has also been super understanding and accommodating.

As of this writing (Thursday evening) I still have but a whisper for a voice and I’m easily tired, not to mention coughing, but I do feel better. It’s going to be a long, slow recovery for me.

Stay safe and be kind,

Éric

The State of Éric – November 2023

Hello Family, Friendns, and Fans,

A lot of stuff is happening so let’s do this rapidfire:

Queer Christmas Craft Fair

As we mentioned in a previous post, we’ll be at Queer Christmas Craft Fair tomorrow (Saturday November 25th) from 10-2. Come get your coffee!!!

Writing

Jen and I are writing the next book in The Gates of Westmeath series and it’s awesome. The only thing keeping me from binge writing right now is that we’re doing the first pass at editing Monsters! Incidental Wedding Guests (Coming June 2024). As much as I love writing, I despise editing. Like everything else in the writing process, it’s much easier to do with Jen.

Renaissance has Copper Tarnish, Stories! The First Unexpected Collection, and Faymous and I will hopefully hear in the new year if they’ll publish or pass.

Work

I’ve been acting (in government that means I’m doing the job but it’s not permanent) at a higher level as a Web Accessibility specialist. It’s pretty much an evolution of my old job as print and PDFs fall out of favour, but it’s a promotion.

This week I signed my papers to make it permanent. It’s better pay and duties that are no longer 10 years antiquated. So yay!

Health

I’ve seen a neuro-opthamologist and had lots of tests including another MRI. Everything came back clean except for a loss of vision in my left eye and the fact that my left eye dilated slower than my right. He thinks I had some sort of nerve issue and he’s sending me to a neurologist and has set up a follow up for June.

Yay nothing serious and that he believes me but boo I didn’t get any answers.


That’s about it now.

Stay safe and be kind,

Éric