pain

Health Update January 2025

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Hello Friends, Fans, and Family;

It’s been an interesting couple of years for my health. I last talked about it in July 2024.

In short, I’ve been dealing with:

  • Pain in both my forearms
  • Dizzyness
  • Fatigue
  • Brain Fog
  • Tingling in my hands and feet
  • Numb and tingling on my left cheek
  • Blurry vision in my left eye
  • Pain in the joints of my hands and feet

Arms and Spine

I am doing exercises and stretches to help avoid pain. It still there in my arms but it’s manageable. I sometimes get pain in my neck that radiates down, but I double up my exercises and it usually goes away within a week.

Migraines

This is the big one. I’m currently taking Amitriptyline to try and prevent the migraines. So far I’ve been on it for two months with an escalating dose, and it hasn’t done much beyond make me sleepy and have terrible dry mouth. If this doesn’t work, there are other drug options.

I am starting to identify my triggers better. I know the following will trigger me:

  • Big change in caffeine consumption (If I have no coffee or if I have 4+ cups)
  • Alcohol (I noticed it with red wine and with cream liqueurs but I’m just cutting it all out.)
  • Changes in eating routine (If I don’t eat every 2-3 hours I start to feel faint and it can trigger)
  • Changes in sleep patterns. (Especially if the change is often)
  • Fluorescent lights
  • Strong smells (Mostly anything floral or going close to a soap store in the mall. Although someone had a poutine at work and the smell lasted all day. I loved the smell but ouch)
  • Changes of 10+ degrees in the weather and rainstorms. (I have no control over this one.)

Stress doesn’t seem to make the migraine worse but it does make the side effects worse. I had a really stressful day in December and for the next two weeks the muscles in my hips hurt like they were on fire. It’s caused by the migraine, the brain, and the two causing muscles to tense too far (probably what happened to my arms.)

I see my doctor on Wednesday and we’ll see what happens. I think this is a long haul.

Allergies

I have restarted my allergy shots and one week hasn’t cured me yet. I’ll be taking them weekly for 22 weeks. My allergist’s office prefers that I do the shots elsewhere so I’m thinking of going to an Appletree near my house on my lunch break.

Neurodiversity

As I mentioned in Friday’s post, I am Autistic and have ADHD. This explains a lot about how I burn out and how drained I feel in certain situations. It, with the migraines, explains a lot of why I feel like crap at certain times.

I’m not sure how this interacts with my other health issues but I’m sure that they interact and make things more complicated.

Sleep apnea and asthma

I have taken an asthma test and I am scheduled for a sleep test this summer. Hopefully these will be eliminated as concerns.

In Conclusion

Despite everything on this list, I feel better than I have in years. With my doctor’s help and hopefully finding the right thing to help with my migraines I should be even better by next year.

Stay safe and be kind,

Éric

Health Update July 2024

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Hello Friends, Family, and Fans;

The slow wheel of healthcare has finally come around. Here’s my last update from April. If you don’t want to read all that, I have had issues the past 2 years with:

  • Pain in both my forearms
  • Dizzyness
  • Fatigue
  • Brain Fog
  • Tingling in my hands and feet
  • Numb and tingling on my left cheek
  • Blurry vision in my left eye
  • Pain in the joints of my hands and feet

The Road So Far

I’ve seen 3 family doctors, 2 neurologists, 1 elbow surgeon, 3 physios, 1 neuro-ophthalmologist, and a neurologist who specializes in MS; and I’ve been poked, prodded, and shoved in metal tubes a lot.

Here’s a list of things that have been eliminated as possibilities for what’s wrong with me:

  • MS and other degenerative neurological disorders (this is a ‘we don’t see signs but if there are changes, come see us’)
  • Tennis elbow
  • Spinal injury
  • Brain tumour

Last year, I did intensive physio with the clinic associated with WSIB. It was a three-pronged rehab, physio, and therapy. Each helped a little but had their limits. The clinic’s goal was only to get me back to work and not to find the root cause of my problems.

It was effective at lowering my pain levels by 20 to 30 percent. It’s gotten a little worse since but I’m still better a year later than I was when I started. My pain is constant but manageable, both because I’m used to it and because of the physio. It still makes everything harder however. That doctor did say I have mild carpal-tunnel and should keep an eye on it.

What’s Wrong with Me

The most recent round of doctors have cleared me of those scary ones mentioned above, and the nice MS doctor has diagnosed me with Complex Migraines (also called Atypical Migraines) and Foraminal Stenosis in the C5-6 disks.

Foraminal Stenosis means that the nerves outside my spine are being pinched. The recommendation is physio to help with back strength and posture. If that doesn’t work, I’ll be referred to a surgeon.

As for the main culprit, they think its Complex Migraines. The quick explanation of this is that I’m having non-pain migraine symptoms regularly. So the blurry vision is like halos, and the rest are typical migraine issues, but my body doesn’t always include more then a feeling of pressure in my left temple.

For the migraines, the doctor recommends:

  • Discovering my triggers
  • Avoiding alcohol, drugs, and tobacco (Not going to be hard since I barely drink and don’t do either of the others)
  • Drinking at least 2 litres of liquid a day
  • A vitamine combo of 400mg each of Magnesium, Co-Enzyme Q10, and vitamin B2 (riboflavin)
  • Regular sleep habits (Go to bed at the same time and wake up at the same time all week)
  • Consuming the same amount of caffeine each day
  • Eating regularly (same time every day)

If that doesn’t work after 3 months, I should talk to my doctor about pain killers or going to a pain clinic.

In the meantime, he recommends I get tested for sleep apnea, get a colonoscopy, and as mentioned above, see a physio.

That means I have a plan for moving forward and a tentative diagnoses. Let’s hope the above can fix me.

I still find it amazing that all this pain in my arms and hands could be caused by migraines, but that’s what we have.

Thanks for reading,

Éric

Health Update April 2024

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Hello Friends, Family, and Fans;

I haven’t written an update since January because I’m still waiting on some results. However, there are some things I can tell you.

How’s my body doing

Heart

I wore a heart monitor for three days and despite what the RSV did while I was sick, my heart is back to normal. My heart rate is still a little high but within normal ranges.

Arms

My arms still hurt, pretty much all the time, but it’s manageable with exercise and stretching. I’ve only needed to put muscle cream on my arms once this year.

Face and left eye

Still numb and still having vision issues. It gets worse if I spend a lot of time concentrating or sitting in a computer chair.

Tests

MRI

I did an MRI of my head, neck, and back. I have an appointment with the neuro-etymologist in June. He might talk to me about it or I might have to wait for the MS doctor in July.

I saw the results but it’s in Medical-jargon and I’m not sure. It seems that there’s a UBO (Unidentified bright object) behind my left eye but according to the internet that could be a bug in the test.

It also say that I have no sign of, “demyelinating disease”.

Lastly it says that I have, “Multilevel degenerative changes within the cervical spine causing various degrees of spinal canal foraminal stenosis, worse at the c5-c6.” Which the internet tells me is a “narrowing that happens in certain places around the nerves that come out of your spinal cord”.

But again, this is my quick googling and not anything official from a doctor.

Vision Tests

I have a few repeat tests for eyes in June and a few to test for MS (unscheduled – doctor wanted to see MRI first).

Allergies

I have bad allergies. In 2007 I woke up feeling super weak and forced myself out of bed. The exertion burst the veins in my eyes. I got an appointment with an allergist and was tested and put on shots. They really helped.

After 5 years, I was told that they wouldn’t help me more and that if my symptoms worsened after 5 years to come see the allergist again.

In 2019, my allergies got really bad and I started getting what I call Allergy Attacks. My bowels cramp, and I get weak, and it takes about a week to recover. I didn’t realize it was allergies that caused it until last year.

I really felt it in 2020 but pushed it off.

I finally broke two weeks ago and contacted my allergist. Unfortunately after 10 years you need a new referral.

Long story short, I have an appointment with my family doctor on Wednesday to talk about allergies.

Colds

Last, and certainly most frustrating, are head colds. I’ve now had 4 since January and I’m pretty tired of blowing my nose and coughing.

I feel better today then I have in a while but I’m still sniffling and coughing. The whole thing is made worse combined with allergies. (And no, going outside and eating dirt will not help strengthen my immune system.)

Conclusion

I’m doing okay and I have leads to what might be wrong with me. Hopefully the doctors can narrow it down and I can start treating whatever it is to make sure it doesn’t get worse.

Stay safe and be kind,

Éric

Health Update November 2023

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Hello,

It’s been a year now since I returned to work and a year and a half since I hurt my arms.

Good News

My arms are staying steady. They almost always hurt, but not enough to affect my quality of life much. I’m mostly doing my exercises and massages and it’s helping. Some days are worse than others, but overall significantly better than I was this time last year. Maybe it was muscle strain and stress.

My doctor sent me to get an MRI. The MRI showed no signs of brain cancer or Multiple Sclerosis. Which is a good thing.

Bad News

The MRI did show something on my left ocular nerve. Combined with the numbness in my face, loss of vision in my left eye, left temple migraine, and vertigo; the doctor made a referral to a neuro-opthamologist with the eye institute.

I had my first set of tests today and will have more in the coming months. They also want to do a targeted MRI for the ocular nerve.

At least they believe me and are trying to figure out what’s wrong.

That’s about all I have, I hope your health improves or stays awesome!

Éric

Health Update April 2023

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Hello Friends, family, and fans;

As I mentioned in March, I did the nerve conduction test with a very condescending neurologist.

Yesterday I had an appointment at the speciality clinic. My very nice occupational therapist (OT) went through a bunch of questions and asked me about a bunch of things. She then did some physical tests and went off to talk to the doctor.

I told her I was worried about the vision problems and the numbness in my face and my worries about MS. She said she’d talk to the doctor. She also said that that was normally something a family doctor dealt with and not them. They are concentrating on the neurologist’s conclusion that it’s muscular.

The doctor came in and asked me more questions and then asked, “What is bothering you more.” I told him it was the pain that bothered me more, but the face that scared me more. His reply was, “Okay then. Let’s focus on the pain.”

So the plan now is to have me see a doctor that specializes in pain and put me with a group consisting of a physiotherapist, a therapist, and my OT. They’ll run special rehab and physio for me two or three times a week. I’m kinda happy about that, since it’ll save us some money on physio that is only covered 80% usually.

I’ll be honest, I’m a little underwhelmed. It’s been 10 months of this and I haven’t had an x-ray or any other tests on the part of my arms that hurt. I’ve had one type of test, no imaging, and this feels very flimsy as a diagnosis. (Is it wrong that I want something definitive?)

The clinic people are really nice and I think they have my best interests at heart, but I feel like they’re focussed on getting me back to work and not really figuring out what’s wrong with me.

I asked again about MS and the OT said that if there had been any signs, the neurologist would have noticed and that the doctor is trusting that. It’s not very comforting, but I’ll have to trust them for now.

I doubt the balance issues, clumsiness, brain fog, trouble sleeping, numbness in my face, and vision issues are due to muscular issues in my arms. I’ll do what they say (I don’t have much choice) and hope it helps, but I’m not convinced. If this doesn’t help, I’ll have to try and see if my family doctor is willing to run a parallel investigation (if he hasn’t fully retired by then).

It’s been a hard week. Glad it’s over and now I can enjoy spending time with my family over the long weekend.

Stay safe and be kind,

Éric

Health Update March 2023

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Hello,

It’s been almost two months since I updated you. It hasn’t been a particularly enlightening two months.

I did finally get an appointment for the specialty clinic. That appointment went well; I have an awesome occupational therapist and doctor who are in charge of my case. The doctor, unfortunately, is an elbow surgeon who’s not quite sure why WSIB has referred me to him, but he’s willing to send me to specialists and tests.

They sent me to a Neurologist. I was really excited to finally see one. He did the exact same test that the carpal tunnel doctor did back in August. He says I have a little bit of carpel tunnel in my wrists, but that shouldn’t be bothering me. There’s no indication that my nerves are damaged or that they’ve had any issues at all.

He ended the exam saying that I was too young to worry about it and that if it were up to him he’d say to forget all this WSIB stuff and just go back to my normal routine and then added that the whole thing was ridiculous.

When I asked him about the numbness in my face he said, “That’s nothing. Ignore it.”

I was disheartened and angry. I’m not sure if he thought I was faking or that I was exaggerating my pain, but it was really condescending.

The nice elbow doctor and occupational therapist had scheduled an MRI for my neck, but with the Neurologist saying that I don’t have any nerve damage, they canceled it.

The downside to the clinic is that I only get appointments every 6 weeks. My next one is early April and hopefully they won’t be as dismissive as the Neurologist.

Unfortunately, I’m still in a lot of pain and it’s not getting better. My face is still numb and it aches a little when I work too long. I also find the vision in my left eye gets worse when I overdo it.

Between the pain, the clumsiness, and the numbness in my face, I’m starting to suspect MS. When I had an optometrist appointment in December, he said he couldn’t get my left eye to be as clear. I asked him about the numbness and that I sometimes got blurry vision in my left eye. He said that it couldn’t be nerves and that it’s possibly a side effect of fatigue. He said the only thing he knew that would affect my eye and not be seen in his tests was MS.

I’d hoped the Neurologist would have been able to test for that, but he didn’t.

MS is a scary prospect, but I’d rather find out than not know. There are plenty of other options; Fibromyalgia, Myofascial Pain Syndrome, and some much scarier, like ALS or cancer.

So a lot happened, but nothing new was discovered. Let’s hope this is just another step to figuring it out.

Stay safe and be kind,

Éric

Yes, I’m still wearing a mask

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Hello Readers,

My workplace has decided that masks are no longer needed in the workplace. They were previously only mandatory in shared locations and not in our cubicles (cubicles which had three-foot high walls and we share with 3 other people.)

The policy was announced on Tuesday and when I went into work on Thursday I was in an elevator with several other people. An older man leaned over to one of the others and stage whispered, “I guess we know who reads the office emails.”

From my experience, 1 in 10 people are still wearing masks and I expect that to lower significantly next week.

Although I fully understand the annoyance with masks and not wanting to wear them, I will continue to wear a mask for the foreseeable future. I’m not going to judge those who choose not to wear them.

I don’t like being sick. I have never liked it. I will never like it.

I caught COVID back in February 2020 and I’m still having trouble breathing and have low energy. It was one of the hardest weeks of my life. The week was bad enough, but I lost taste for a few months, had constant headaches, pain, and weakness for almost a year. I worry about what will happen to me if/when I get it again.

So, yes, I will wear my mask. It might not protect me completely, but it’s all I have.

Stay safe and be kind,

Éric

Things I Didn’t Know About Pain

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Hello,

I thought I understood what pain does. I mean I have two tattoos, been scratched by a baby, and am really clumsy. Joking aside, I’ve had pain before. I’ve broken my ankle, sprained both several times, pulled a muscle in my leg, and have had a neck injury.

However, there are things I didn’t understand about long term pain and how it eats at your mental health and quality of life. Three things have really surprised me.

First, I’ve noticed that my anxiety, executive dysfunction, agoraphobia, RSD, and aversion to change have all been really hard to deal with the past few months. It wasn’t until last week after a stressful work day (that shouldn’t have been that bad) that I realized that the constant pain is amplifying the rest of my issues.

Second, I’ve found the oscillation between hope and despair to be really exhausting mentally and physically. From worrying that the pain and loss of mobility in my arms is permanent and only going to get worse to making plans for when this will be over and I’m back to normal. Hopefully this will get better once I’m allowed to see a doctor.

Third, I had never thought of how the pain would lead to a lack of sleep. It wakes me up two to five times a night and I don’t sleep well when I do. On really bad nights, despite the Voltaren and Advil, I lie awake and barely sleep. I don’t think I’ve slept more than 2-3 hours straight since last June.

The combination of the three means that I’m constantly tired, everything feels like a large task, and life feels more dramatic.

The worst part is feeling like I’m failing myself and my family.

I’m supposed to hear from WSIB this week with a decision on my care. Hopefully, things will get better after that.

Sorry for the sad post. No help needed, just love.

Stay Safe and Be Kind,

Éric

Carpal Tunnel Syndrome and Stress

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***TL:DR I have Carpal Tunnel Syndrome. Posts will be shorter and I might be doing some repeats. Guest Posts appreciated.***

Hello,

I’ve been a fool. Since February, my work has been fairly busy and regular. It’s a lot of short keys, typing, and mouse work. I’ve been having pain in my hands for a while now.

I wrote about it for the Spoonie Author’s Network. At the time, the Doctor thought it was the same arthritis that was in my big toes. After a year of tests he eliminated that option. We thought it was maybe tendinitis and he sent me to physio.

My prescription for physio was written in February 2020. I didn’t make it. I didn’t want to risk getting my children sick and was experiencing long covid. A few weeks turned into a few months and then a few years.

The pain came and went, but was usually worse when my hands were cold. So I didn’t worry. I kept thinking, “I’ll see my doctor about it when the pandemic is over.”

Fast forward to last November and I noticed my arms getting numb when I slept. (I sleep on my sides and it was the ones that I didn’t sleep on that went numb.) The pain got worse around Christmas, but got better after 2 weeks off.

Then we went into report season at work and I started writing a new book. So my days looked like this: Work 8 hours, Ukulele practice 15-45 minutes, and then 1-2 hours writing, formatting, etc. I’m also the primary diaper changer in the family… so… yeah.

The pain got worse and worse and I just kept thinking, “I’ll see my doctor about it when the pandemic is over.” and, “It’ll get better when I have less clicky work.”

Then Monday, I was told by my bosses that I had to come into the physical building of work. The meeting was tense and I won’t lie, I felt attacked. We’re so close to an infant vaccine for Pegasus… I asked if I could wait until September and they refused. “Isolating is a choice we made. Coming in to work is my responsibility.” That’s a paraphrase, but arg. I’m still angry.

I’m not sure what I did during that meeting to myself, but after, my pain in my arms and hands went from a 5 (Interrupts some activities) to 8 (Hard to do anything) the pain has been fluctuating from 6-8 since.

I made an appointment with my doctor, but he couldn’t see me until a week later. I was in tears as I tried to figure out what to do. I eventually decided to go to the after-hours clinic and saw a wonderful doctor. He diagnosed me with confidence after asking some insightful questions. He gave me two weeks off work, tests for my family doctor, and a prescription for splints to sleep with. Now it’s a waiting game. I’m seeing my doctor next week and so far, after 3-4 days, I’m still in a lot of pain. This post is taking forever to write, but I’m taking lots of breaks.

I’m worried that my reticence to see the doctor will result in permanent damage. It shouldn’t have taken a level 8 pain or my bosses showing how little they care about me to make me listen to my body and get help. The moment the pain started to increase, I should have made appointments.

I didn’t want to let my family down, I didn’t want to let myself down, and I didn’t want to let my work down. It was foolish! Work doesn’t care about me, they never really have, family only want me to be healthy, and I’m more disappointed now than if I had been treated earlier.

Expect this blog to have shorter posts (this took most of a day with breaks). I’ll let you know what happens.

At least I’m getting a lot of snuggles.

Stay safe and be kind,

Éric

Blush: Symphysis Pubis Dysfunction

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One of the benefits of being the author of this blog is if I have a question about my own health, researching doesn’t feel like a waste of time because I can then write about it.

One of the negatives of being the author of this blog is that everyone knows what is going on with my health. (Not that every post is about me. I usually say if it is.)

Good thing I don’t mind sharing?

So I’m pregnant.

Is anyone surprised? I guess you haven’t seen me lately.

I’m 35 weeks and 6 days today.

Image of myself pregnant, with my daughter happily reaching up to my belly.

It’s also our ten year anniversary, but that’s irrelevant to my health. I’m just excited about it and want to share.

The thing about being so close to the end of the pregnancy is that, well, you’re close to the end. Very mixed feelings about this. On one hand, it’s so cool to feel movement from another being inside of you and you’re never alone (that doesn’t really go away if you have a clingy baby/toddler). On the other hand, you’re sore, it’s hard to move/roll over in bed, and the number of doctor’s appointments increases dramatically (a pain to get to and a pain to arrange around your schedule).

Today, I want to talk about soreness. Specifically the soreness that comes once hormones like relaxin kick in.

Relaxin is pretty great, to be perfectly honest. It’s the hormone that loosens the ligaments and muscles in the hips and pelvic region and allow for the human body to stretch enough to deliver a baby vaginally. Remember, the pelvic area, on a regular day, is only so big. The bones have to be able to accommodate the head and shoulders in order to push a baby out. Hence, relaxin.

However, relaxin starts its work in the third trimester (usually. Sometimes it’s early). So not only are you gaining extra weight from the baby gaining weight, but your ligaments and muscles are no longer supporting you the way that they did before. This can cause quite a lot of pain.

Enough that there’s a name for it.

Symphysis Pubis Dysfunction (SPD).

I’d like to make a quick note here that although this is most often referred to as a symptom of pregnancy, you can have it and not be pregnant.

So how can I minimize the pain from SPD?

Avoid triggers like standing or sitting for too long, crossing your legs, and lifting or pushing.

Whew. That’s a lot.

But you do a lot with your hips without realizing it.

Physiotherapy is very helpful. Your physiotherapist can give you exercises that will help to minimize the pain and recommend other ways of improving muscle function and joint stability.

Personally, the things I find the most helpful are icing the outside of my hips and doing Kegels. Even if it hurts at the beginning of my Kegel reps, by the time I get to rep 5-6, I feel so much better. Sleeping with a pillow between my knees has helped immensely as well, especially since I don’t normally lie on my side – I much prefer sleeping on my stomach. Not exactly an option right now for some reason.

I hope this helps those of you who are feeling pain, and for those who know me, it helps you understand why I wince every time I move to stand up or try to get into a car. (Widening legs or taking a big step is rather painful for me, especially at the end of the day.)

If you’re not in pain and don’t know me, I hope you at least found this interesting.

References

If you’re enjoying the Blush blogs, consider learning more with Blush: The Card Game from Renaissance Press.