RSV and I

Hello Friends, Family, and Fans,

Sometime in the end of November, Dragon got sick again with her third cold. It quickly passed to Pegasus and to my mother-in-law. Jen and I were mysteriously unaffected.

Then I got a tickle in my throat and HUNGRY. As long as I can remember, when I start a non-vomiting cold, I get ridiculously hungry. Maybe my body is trying to get things ready for a bad cold.

By Saturday December 2nd, I was sick. I had trouble eating, moving, and talking. I tried to drink water as much as possible. Soon it was getting hard for me to breathe and both kids were still feeling it. We saw our family doctor on the 5th and I was prescribed a puffer and tests. Jen had a tickle by that point.

My nights were spent coughing and trying to force air into my lungs. In the Thursday as I was about to get a chest x-ray, my watch beeped and said something like, “You’re at rest and your heart rate just jumped, are you okay?”

Friday the 8th, I was sitting on the couch feeling my heart beat fast and not able to catch my breath. Finally Jen said, “Maybe you should go to the hospital?”

I didn’t want to. I didn’t want to leave my house and comfort, but my chest hurt. Jen called 911.

The ambulance took me to the Civic hospital where we found out:

  • My heart rate was 230 (normal resting is around 80-90)
  • I was dehydrated (probably from not being able to eat much, diarrhea, and fever)
  • I had low potassium, sodium, and magnesium
  • I had no vitamin D (doctors used the words “impossible” and “weird” more than I like about this)
  • I had a mild urinary tract infection

All of which was being caused by severe case of RSV and mild pneumonia.

At the hospital, they tried to shock my heart back into normal rhythm (twice) but it didn’t work. They gave me an IV with multiple medicines to help bring my heart rate down and by Saturday afternoon it was in the low 100’s.

Art by Dragon that was brought to the hospital in a care package along with some clothes and toiletries.

The rest of the weekend was spent coughing, hooked up to machines, and eating way too much crushed ice. The hospital staff took amazing care of me and I would be dead right now if not for them.

I was released on Monday, with pills that would control my heart rate, vitamin D supplements, and a plan to look in on me. They assure me the heart rate won’t be an issue once I get over the cold and I’ll be back to normal. (There was a hiccup with one of my IV sites getting infected, but I’m on antibiotics now.)

Now I need to recover. I’m still sick with RSV. I have no voice, my nose leaks, I’m coughing all night, I feel weak and dizzy. Several times I’ve worried about collapsing ,but I’m getting stronger.

Jen really stepped up and even through her own sickness (much shorter and milder than the rest of ours thankfully) made sure the kids and house were taken care of. I’m really proud of her.

We had a lot of support. My in-laws have been stalwart helpers, drivers, and kid herders. We also have amazing friends and neighbours who checked in and made sure we were okay. Thank you!

My work has also been super understanding and accommodating.

As of this writing (Thursday evening) I still have but a whisper for a voice and I’m easily tired, not to mention coughing, but I do feel better. It’s going to be a long, slow recovery for me.

Stay safe and be kind,

Éric

Dear Dragon and Pegasus – Sickness

Dear Dragon and Pegasus,

The past few weeks you’ve both been disturbinglydown with the sickness“. Dragon brought home a cold and it wasn’t long before Pegasus caught it; he always wants to do what his big sister is doing.

Just when we thought the cold was under control, Dragon went to school… for a couple days before calling home with a sore tummy. She vomited twice on the way home.

So we went to CHEO (which Dragon kept calling CHEREO for some reason.) Mum was with her for the first part of the ten hour wait and I was for the rest. It was exhausting and because of her non-standard symptoms, they missed that she had an ear infection. Dragon, sadly, missed Halloween because of it.

Two days later, her ear hurt and we went to the after-hours clinic. (Mum adds: MUCH faster than the hospital, but we had thought she had broken a rib or something and would need x-rays!) They figured out the ear infection and sent her home. The antibiotics seem to be helping, but it’s slow and the upset stomach, dizziness, and nausea are still there.

As previously mentioned, Pegasus insists on doing everything his older sister does and got himself an ear infection too. So off to the clinic on Sunday for him. Antibiotics are started and hopefully he’ll feel better soon.

The two of you spent a long time not getting sick because of COVID isolation and I forgot how hard it is watching you be sick. I feel completely helpless and I hate it. I’m the parent, I should have all the answers right?

I hope you feel better soon.

So far, Mum and I are still okay. Tired and ragged, but okay.

I love you my little Dragon and Pegasus,

Papa

Yes, I’m still wearing a mask

Hello Readers,

My workplace has decided that masks are no longer needed in the workplace. They were previously only mandatory in shared locations and not in our cubicles (cubicles which had three-foot high walls and we share with 3 other people.)

The policy was announced on Tuesday and when I went into work on Thursday I was in an elevator with several other people. An older man leaned over to one of the others and stage whispered, “I guess we know who reads the office emails.”

From my experience, 1 in 10 people are still wearing masks and I expect that to lower significantly next week.

Although I fully understand the annoyance with masks and not wanting to wear them, I will continue to wear a mask for the foreseeable future. I’m not going to judge those who choose not to wear them.

I don’t like being sick. I have never liked it. I will never like it.

I caught COVID back in February 2020 and I’m still having trouble breathing and have low energy. It was one of the hardest weeks of my life. The week was bad enough, but I lost taste for a few months, had constant headaches, pain, and weakness for almost a year. I worry about what will happen to me if/when I get it again.

So, yes, I will wear my mask. It might not protect me completely, but it’s all I have.

Stay safe and be kind,

Éric

Carpal Tunnel Syndrome and Stress

***TL:DR I have Carpal Tunnel Syndrome. Posts will be shorter and I might be doing some repeats. Guest Posts appreciated.***

Hello,

I’ve been a fool. Since February, my work has been fairly busy and regular. It’s a lot of short keys, typing, and mouse work. I’ve been having pain in my hands for a while now.

I wrote about it for the Spoonie Author’s Network. At the time, the Doctor thought it was the same arthritis that was in my big toes. After a year of tests he eliminated that option. We thought it was maybe tendinitis and he sent me to physio.

My prescription for physio was written in February 2020. I didn’t make it. I didn’t want to risk getting my children sick and was experiencing long covid. A few weeks turned into a few months and then a few years.

The pain came and went, but was usually worse when my hands were cold. So I didn’t worry. I kept thinking, “I’ll see my doctor about it when the pandemic is over.”

Fast forward to last November and I noticed my arms getting numb when I slept. (I sleep on my sides and it was the ones that I didn’t sleep on that went numb.) The pain got worse around Christmas, but got better after 2 weeks off.

Then we went into report season at work and I started writing a new book. So my days looked like this: Work 8 hours, Ukulele practice 15-45 minutes, and then 1-2 hours writing, formatting, etc. I’m also the primary diaper changer in the family… so… yeah.

The pain got worse and worse and I just kept thinking, “I’ll see my doctor about it when the pandemic is over.” and, “It’ll get better when I have less clicky work.”

Then Monday, I was told by my bosses that I had to come into the physical building of work. The meeting was tense and I won’t lie, I felt attacked. We’re so close to an infant vaccine for Pegasus… I asked if I could wait until September and they refused. “Isolating is a choice we made. Coming in to work is my responsibility.” That’s a paraphrase, but arg. I’m still angry.

I’m not sure what I did during that meeting to myself, but after, my pain in my arms and hands went from a 5 (Interrupts some activities) to 8 (Hard to do anything) the pain has been fluctuating from 6-8 since.

I made an appointment with my doctor, but he couldn’t see me until a week later. I was in tears as I tried to figure out what to do. I eventually decided to go to the after-hours clinic and saw a wonderful doctor. He diagnosed me with confidence after asking some insightful questions. He gave me two weeks off work, tests for my family doctor, and a prescription for splints to sleep with. Now it’s a waiting game. I’m seeing my doctor next week and so far, after 3-4 days, I’m still in a lot of pain. This post is taking forever to write, but I’m taking lots of breaks.

I’m worried that my reticence to see the doctor will result in permanent damage. It shouldn’t have taken a level 8 pain or my bosses showing how little they care about me to make me listen to my body and get help. The moment the pain started to increase, I should have made appointments.

I didn’t want to let my family down, I didn’t want to let myself down, and I didn’t want to let my work down. It was foolish! Work doesn’t care about me, they never really have, family only want me to be healthy, and I’m more disappointed now than if I had been treated earlier.

Expect this blog to have shorter posts (this took most of a day with breaks). I’ll let you know what happens.

At least I’m getting a lot of snuggles.

Stay safe and be kind,

Éric

Long COVID?

Hello My Imaginary Friends,

I swear I’ll get back to writing about writing and how cute my kids are soon.

Two years ago, my family and I went to Disney World. Baby Pegasus, at 7 months, got sick. He had a moderate fever and we were leaving that day.

As I was playing with him, he sneezed into my mouth. Parenting is sooo glamorous.

Sick baby Pegasus lying on the floor asleep

We did what we thought was best and took him home as fast as I we could. At the airport, we gave him crushed up tylenol and hoped for the best.

I started feeling off on the plane. By the time we got home, I had chills, aches, and a fever too. We visited the clinic and the doctor said that both of our lungs were clear and to keep an eye out for trouble breathing. She said, “Even if it’s the new virus, we don’t have the testing to check.”

Jen and Dragon had mild fevers, but nothing else.

The next few days were a blur of pain and half sleep. I couldn’t stand, I couldn’t have the kids snuggle me without pain in my chest. Everything hurt like I’d sprained it. Nothing I’ve ever experienced compared to the amount of constant pain. (Keep in mind that I once needed to have my throat lanced from a blister caused by strep throat.)

I was so weak that I couldn’t make coffee. That sounds like a joke, but I have a point. When I recovered enough to try and restart my normal routine, I started making myself coffee. I didn’t like the taste. It was warm and mildly sweet, but there was nothing else there. I tried to make it stronger and couldn’t tell.

In retrospect, I should have come to the conclusion that I’d caught COVID, but things were stressful and I was going back to work after my parental leave. I assumed I just needed to get my taste for it back. I also remember at that time, that I only really enjoyed salty or spicy food because it was all I could taste.

Father and son knocked out and feeling terrible.

Over the past two years I’ve noticed a few things about myself:

  • I am easily irritable
  • It’s harder to catch my breath
  • I started having trouble sleeping even when exhausted
  • I’m always tired
  • I’m always fatigued
  • I have a harder time concentrating
  • I forget stuff
  • I constantly have a headache

I thought it was the baby not sleeping, the stress of a worldwide pandemic, or returning to work.

Looking back through I see that some of those things have been getting better. I can now taste coffee although it does taste different. Even though it smells the same, it feels like weird Berenstain Bears Effect. The fatigue is getting better. I used to be able to do one thing a day and I’d be wiped. Showering would destroy all my energy and now it’s back to making me feel better.

I still have a lot of the other issues, the fatigue combined with insomnia is hardest to deal with. It makes me hate going to sleep. I also wake up in all kinds of pain.

So… I guess I have long COVID, and according to my doctor, there’s nothing I can do about it. Thankfully I work from home and have an amazing family.

My big worry is if it affected the kids. How the hell do you tell if it affected a 3yo or 7mo? They’ve changed so much that there’s no real way to tell. It seems like they’re fine and I really hope they don’t suffer any long-term effects.

Hopefully, with full vaccination and some common sense we can avoid this happening to them because I’m telling you, it sucks. I feel like I’ve aged twenty years.

Very serious faces from father and Pegasus

When someone tells you, “It’s just a cold” or “We should just get it over with,” they’re wrong. Get vaccinated, wash your hands, wear a mask, and don’t get it if you can avoid it.

Stay safe and be kind,

Éric

Dear Pegasus – Baths

Hello My Little Pegasus,

A few months ago, you had shellfish in pasta sauce. You had a really bad night. From that and another incident, we have been assuming that you have an intolerance. (No breathing issues or hives, just puking and upset stomach.) We’ll have to get you tested post Covid, but until then, we’ve been trying to avoid it.

Unfortunately, we gave you some food a two weeks ago that had been cooked with shrimp. You didn’t puke, but you had really bad diarrhea. I was tired and very surprised and I didn’t react great. I had to bring you to the other bathroom and clean you there, a quick shower seemed the right idea, but I think it might have been a little traumatizing for you.

Unrelated but adorable picture of Pegasus sleeping.

So baths haven’t been much fun lately. You seem terrified you’ll poop in the tub unless you’ve already pooped. Even then, you don’t seem to enjoy and play the way you did before the incident. I’m sorry I didn’t handle it well and I hope I haven’t ruined baths for you.

This weekend, you watched Dragon’s bath and she had a great time, so hopefully that will help. I’ll probably try a bath with both of you together and see how that goes.

I hope we can go back to you loving the water. It’s hard to bathe you when you don’t want to be.

Time will tell.

I love you little Pegasus,

Papa

Dear Pegasus – First Puke Night

Dear Pegasus,

Last night you woke up and puked large un-chewed chunks of zucchini and little tiny seafood. It wasn’t fun for anyone. (Dragon didn’t wake up, so not bad for her.)

Two baths, three sheets, four pyjamas, and lots of sad looks later, you fell asleep.

You were so afraid of lying down that you insisted on sitting up in my lap. Every time you nodded off, you had this look of worry on your face.

At one point, close to 3:20, you settled into my arm, looked up at me, sighed deeply, and said, “Papa.” It was so soft and sad. You settled into sleep not long after and you insisted on being held while you slept.

A hard night and lots of worry, but you’re fine now and it’s hopefully not going to be a new trend.

I hate not being able to do anything to make it better, but hopefully holding you helped make you feel more comfortable falling asleep. You seem okay now and are happily playing.

Not looking forward to tonight. Hopefully you won’t associate puking with sleep. I also hope this isn’t a new habit.

Love you!

Papa

Arg. and NaNoWriMo Cursed

Hello My Imaginary Friends,

I’m feeling pretty crappy right now. Some sort of bowel/indegestion/pain/thing. I had decided to do NaNoWriMo sort of but I’m starting to think I’m cursed. This will be the fifth year I’m not feeling well at the beginning of November. Sometimes it was just allergies but a few times it’s been like this. sigh. I’ll still try once I can concentrate.

So short post but enjoy this adorable picture of the brood at halloween.

Good luck to those that are writing!

Be safe and be kind,

Éric

It’s Just Allergies

Hello My Imaginary Friends,

I have recently been no-so-subtly accused of faking sick. It’s not the first time and I’m sure it won’t be the last.

I’m used to the usual scenario where I mentioned to someone that I have severe allergies and they either nod condescendingly or roll their eyes.

I get it, seriously, if you’ve never had to deal with allergies it’s easy to dismiss. I mean the most common portrayal of people with allergies in movies and television are either ridiculous nerds or hypochondriacs, mostly both. (I’m looking at you Stargate SG1 and Stargate Atlantis.)

Even people with mild allergies don’t fully understand what it can be like. They’ll have the sniffles in spring or get red itchy eyes when they pet a cat.

I’ve lost track of the amount of times people have told me, “Oh yes, I’m allergic to cats too but you get used to it living with them.”

So here’s a short partial list of things I’m allergic to:

  • Cat hair and dander
  • Dog hair and dander
  • Oak pollen
  • Spruce pollen
  • Poplar pollen
  • Ragweed pollen
  • Grass itself and the pollen
  • Dust and Dust Mites
  • Mould
  • Bees
  • Mosquitos
  • Coconut milk and coconut oil

That’s the most common and it’s about a quarter of the things I’m allergic to. Also among the worst.

Symptoms

I am extremely lucky not to have anaphylaxis. My throat has never fully closed and I’ve never had a seizure. Every person reacts differently to allergies, despite what the commercials try to tell you.

My milder symptoms are mostly itchy ears, itchy eyes, cough, runny nose, itchy throat, and hives.

The more severe symptoms are nasal pressure, diarrhea, nausea, breathing difficulties, and sleepiness.

The absolute worst symptom is the weakness. When I get hit with a bad allergy attack I’m weak as a kitten. Before I got the shots, I had days were getting out of bed was such a struggle that I burst veins in both my eyes from the effort of sitting up. I always make the joke of, “Who turned up the gravity?” because it feels like everything is extra heavy and draining.

The weakness means that around Christmas time I usually feel like total shit. If that sounds odd think about what happens when business and people bring out decorations that have been in basements and attics, bring in dying trees, or bring out old dusty trees. What happens is the amount of indoor mould and dust skyrocket.

Linked Conditions

As if those symptoms aren’t bad enough, allergies cause and aggravate secondary conditions.

Oral Allergy Syndrome

This is a fun thing where your body thinks you’re ingesting your allergy when you eat something else. Basically, certain raw fruits and veggies have proteins that are similar to pollen.

If I eat a raw apple my tongue tingles and mouth itches because my body thinks I’m eating Oak pollen. Thankfully this doesn’t happen with cooked fruits. Before the shots, my throat would start to close.

My wife still laughs about the time I told her, “Isn’t it cool that celery is a little spicy?” Apparently it’s not supposed to be spicy.

IBS

I think it’s because my body is weakened but during a bad allergy day, my IBS becomes ten times worse.

Migraines

The nasal pressure combined with stress will trigger migraines. My vision blurs, I get dizzy, I lose sense of time, I feel like I’m going to puke, and my head hurts more than any pain I’ve experienced.

Anxiety, Depression, and Insomnia

This is a combination of antihistamines and fall out from the other symptoms.

It’s hard to concentrate or feel good about yourself when just going to the washroom is exhausting.

If I have a certain type of antihistamine, I get shaky, and feel like my entire body is vibrating. It lasts for 12 hours and makes sleeping hard.

Bad Day?

So I’ve talked about bad days. I’ll be completely honest that on my best day I still have most of the mild symptoms. That’s despite having done shots for 5 years and using antihistamines.

A bad day, however, happens if I am accidentally, or unavoidably, exposed to an allergen. Some it’s only once like coconut oil, coconut milk, or bug venom, some it has to be prolonged like dust, mould, or trees.

Either way, a bad is a day I can barely move, feel sick, and just generally want to die. I’ve done work during those days, but it’s not my best work since I’m totally out of it. Most of the time I have enough energy to watch tv, shower (the steam does wonders for my nose), and eat.

What Now?

So what do I want you to do about this? Nothing. I just wanted to vent and explain what it’s like being me. Hopefully it’ll make you more compassionate to people with allergies.

Mostly, if I tell you I’m not feeling well, know that I’m not lying.

 

Thank you for reading,

Éric

I’m being attacked!

Hello My Imaginary Friends,

I’m being attacked, but don’t worry; my immune system is on the case… I hope.

The entire JenEric household had been besieged by this horrendous virus.

So short story short… I’m sick and will now go hide under some blankets.

To your health!

Éric