Hello family, friends, and fans,
A lot and very little has happened since my April update.
Let’s start with good news. I have a date for my MRI on July 14th. I also have a date to go with (Jen will be driving me. With two kids you must take whatever you can as a date.)
What’s Going on with Treatment
It looks like my time with the OWN treatment team will be ending in mid July. I’ve been doing exercises to strengthen the muscles, physiotherapy to loosen the muscles, and some therapy to think about muscles.
The therapy has been helping the most, stress relief and permission to be selfish and self care are good. I’ve also been given some techniques to control my emotional spirals and overreactions.
The exercises and physio have been maybe helping. I have better control of my fine motor skills and my physio says my muscles are looser. They’re going to give me a home routine.
We’re also working towards getting me back to full time work instead of my old schedule of 30 minutes on and 30 minutes off.
How am I Feeling
My pain is steady. That sounds bad, but it’s actually a good thing. I’m not experiencing any massive flares. I’m still at a 6-7 pain level, but no more jumping to 8 and feeling sick.
The numbness in my arms, hands, and face are still there and haven’t changed. The vision problems I’m having with my left eye are still there. I’ve had a couple of really scary vertigo episodes where it felt like the entire planet shifted 90 degrees. Not fun.
My mysterious illness where I have bowel cramps, fever, aches and pains, and weakness; came back again. I think it might be allergy and / or overdoing it related. I’m not sure. I went to the ER in 2018 for it and they found nothing, I saw my family doctor and he did blood and feces testing and he found nothing, I saw a virtual doctor and he told me I was fat. My family doctor said we’d deal with it if it happens often, but I’m not sure what that can be defined as. It only happens once or twice a year.
Now we wait and see what the MRI says. WSIB will be washing their hands of me in July and I’ll be doing what I can to manage the pain. They say that my body is reacting well and that the pain will reduce over time. I hope they’re right.
Stay safe and be kind,
Éric
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