Hello Friends, family, and fans;
As I mentioned in March, I did the nerve conduction test with a very condescending neurologist.
Yesterday I had an appointment at the speciality clinic. My very nice occupational therapist (OT) went through a bunch of questions and asked me about a bunch of things. She then did some physical tests and went off to talk to the doctor.
I told her I was worried about the vision problems and the numbness in my face and my worries about MS. She said she’d talk to the doctor. She also said that that was normally something a family doctor dealt with and not them. They are concentrating on the neurologist’s conclusion that it’s muscular.
The doctor came in and asked me more questions and then asked, “What is bothering you more.” I told him it was the pain that bothered me more, but the face that scared me more. His reply was, “Okay then. Let’s focus on the pain.”
So the plan now is to have me see a doctor that specializes in pain and put me with a group consisting of a physiotherapist, a therapist, and my OT. They’ll run special rehab and physio for me two or three times a week. I’m kinda happy about that, since it’ll save us some money on physio that is only covered 80% usually.
I’ll be honest, I’m a little underwhelmed. It’s been 10 months of this and I haven’t had an x-ray or any other tests on the part of my arms that hurt. I’ve had one type of test, no imaging, and this feels very flimsy as a diagnosis. (Is it wrong that I want something definitive?)
The clinic people are really nice and I think they have my best interests at heart, but I feel like they’re focussed on getting me back to work and not really figuring out what’s wrong with me.
I asked again about MS and the OT said that if there had been any signs, the neurologist would have noticed and that the doctor is trusting that. It’s not very comforting, but I’ll have to trust them for now.
I doubt the balance issues, clumsiness, brain fog, trouble sleeping, numbness in my face, and vision issues are due to muscular issues in my arms. I’ll do what they say (I don’t have much choice) and hope it helps, but I’m not convinced. If this doesn’t help, I’ll have to try and see if my family doctor is willing to run a parallel investigation (if he hasn’t fully retired by then).
It’s been a hard week. Glad it’s over and now I can enjoy spending time with my family over the long weekend.
Stay safe and be kind,
Éric